
I am working really hard to take a bottle. The feeding therapist has decided that I’m only strong enough to drink once a day, the rest of the time my food goes through a tube into my stomach. I need to master the suck, swallow, breathe exercise. I just keep forgetting to breathe! The oxygen in my nose makes it hard too.
Aunt Nancy arrived today from Los Angeles. She is funny and puts her face right up to my box. She’s a nurse so she knows about what is going on.
I’m not feeling very good (again!) I’m a little weak and have lots of gas in my tummy. I love when mommy puts a warm blanket on my tummy when it hurts. The nurses let me have a few minutes without oxgen blowing into my nose. My nostrils are really sore, so they are holding an oxygen "blow-by" thingy to give me a break. I can't wait to be rid of all these tubes!
The doctors say that I am very anemic but they want to put off a blood transfusion to see if my body starts making its own red blood cells. I had another heart ultrasound today. The test doesn’t hurt, but the gel is really cold!
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